For those of you that know me well, you know that patience is not one of my virtues. This constant waiting game is enough to create more ulcers than the original diagnosis will!
When we first met with the doctor, she said that I needed all of these tests and scans done before we started treatment…and that we would want to get it all done within the next two weeks. Well, here we are almost 3 weeks later, and we just finished the last of the tests and scans. (Not including the genetic testing still to be done later.) So, since the 4th of March, I’ve had a tissue biopsy, pre-op procedures, an MRI, second opinion consultations, an echocardiogram, chemo class, port surgery, another biopsy, a CT scan, and a bone scan. Needless to say, they’ve seen just about every part of me they can see by way of a machine.
Fortunately, everything has come back with good results. To get a little technical, and super boring… The CT and bone scans both showed no abnormalities or other mets anywhere else. Praise God! The second biopsy showed the same markers as the first biopsy. The only challenge is the discordant results from the original biopsy regarding my HER2 status. The first test (IHC) showed it as negative; the second test on the same tissue (FISH) showed it as positive. The second biopsy showed the same negative result on the IHC test. This creates a huge question around the true HER2 status. Because of that one positive status test, they will have to treat me as if I’m both negative and positive HER2. What can I say…I’m truly special…I can be both positive and negative at the same time! For some of you, that won’t come as a surprise! It’s like sarcasm is literally alive in me, and in this tumor. Ha ha ha ha ha…
This means that the originally planned chemotherapy regimen will have to be changed. Ugh! Since this was just decided today, it all has to go back to insurance for approval. Ugh! This means that my start date for chemo will likely be pushed back again. Ugh! I mean, come on!!! I’m in no hurry to experience the joyful <eyeroll> side effects that come from it, or in losing this huge head of hair I have, but I’m ready to start killing this thing! You know what I mean?!?!?
I’m almost (ALMOST, dangit) forty. Cancer isn’t even supposed to come knocking on your door until after then, if you ask my opinion. I’ve never been one to arrive at things early…I’m more of a just on time or maybe a minute or two late…so, not sure how this showed up so early for me. But, here we are. I feel good…that’s what’s so strange is that I still feel perfectly normal. I was telling Sara the other day about what will happen when I start chemo. I was telling her that I’m probably going to be really sick, but ironically, it’s the medicine that is going to make me look and feel so badly. So, we’ll make it through those rough days and put them behind us…eventually, once we get started. Hurry up and wait!!